I'm sitting on the side of my bed debating my next move on Words with Friends when my bedroom door gently opens and my freshly-turned (as in today) 17-year-old daughter bounces over to me with a small box in her hands.
"Look what I bought today with the money I got from Nana and Grandpa." She opens the gold ornate box to reveal a palette of shimmering bronze, gold and brown eye colors.
"Wow," I answer. "Those are really pretty." As I say those words I am at the same time wondering how my daughter turned out so different from me. In this very blog I could envision me writing about the problems with women feeling they need to hide their faces in color. I would write about how cosmetic companies market to women to make them feel inferior--that the features they are born with will never be good enough. But at the same time I am torn, because for Sxylar the freedom to play with these colors is a form of expression. For her it is an art. She doesn't see the act of wearing makeup as limiting. She sees it as limitless.
She and I are so different. And I realize this is okay. And I also realize I am not always right.
I remember an entry I wrote back in March. In regard to Clara having Down syndrome I mentioned that none of our children turn out the way we expect them to. They don't. Let them be who they are and they turn out better.
I look at this young woman sitting beside me and I smile because I raised her. And she is beautiful. Happy birthday, my baby girl. I'm so proud of you. Thanks for helping me see the world through your eyes.
posted by Kel on child rearing, freedom, self-expression
Your bad decision changed all of our lives, but I'm sure it wasn't the first bad decision you've made. I couldn't have been so lucky to catch you on your first offense. I'm not naive enough to believe it. I am lucky that I caught you at all. I am beyond thankful that I caught you. Otherwise, I would still be with you and you would still be violating us.
I saw the anguish on your face that day in court. I know you are in pain. I know you regret that you got caught. I know that is all you regret. Because now you have to find someone else to violate and you were so comfortable here violating my baby girl and God knows who else.
I don't want to write you to berate you. You will get plenty of that for the rest of your life or at least while you're registered as a sex offender. I hope you have to register as a sex offender, because then at least your next potential victim will have warning that I never had.
I don't miss you. I've moved on and I'm quite happy with life as it is. I do, however, still live with the guilt that you were sneaky enough to win my trust and do this to us.
I never want you back. I don't even contemplate it, and I haven't since that night.
You did not break our hearts, and you did not break us. What you did made us stronger because now you can never hurt any of us again. If we have to be around you, we will be watching you.
Take your pervert phone and enjoy it while you can. I feel strongly that karma will find its way to you and justice will prevail.
I'm done.
posted by Kel
down syndrome is okay
I originally started this blog as a place to release the pain I was dealing with upon learning Clara, still in utero, had Down syndrome. As I learned about Ds I became more and more comfortable with it. When she was born I absolutely and unconditionally loved her but wished I could still take that extra chromosome away from her.
Today, just under two months shy of her first birthday, I wouldn't change who my little girl is for the world. I love her as she is. I now believe, contrary to what I was saying a year ago, that this is who she was meant to be.
I see other parents in such a rush to get their kids caught up with typical children and it makes me feel guilty that I am so accepting of Clara as she is. I question my parenting. Should I be pushing her harder? Am I at fault if she isn't meeting typical milestones? I don't know what the right answer is. I want her to be happy, and I guarantee she is getting unlimited amounts of love from a mommy who is damn proud.
bath time
There are times I find myself trying to seer a moment into my mind, as if to tuck it away so I can retrieve it in my later years when I need a happy memory. Or maybe it's for if I go to heaven, I want to remember the beautiful things I experienced here on earth.
One of those moments was tonight.
The babies always bathe together. It's easier that way. I bathe Clara first and I always let her end her bath with splash time. She sits up after being scrubbed down and looks between her feet and pats the water. She loves it.
Tonight Lxkas was sitting next to her and lightly splashed along with her, but minding his own water territory. He is twice her size, but with their wet, dark hair and smooth, brown skin they were equals in their love of the water and it was a beautiful sibling moment. I wished I had a camera handy but I don't even think it could have come close to doing the moment justice.
new job
Yes, I have joined the ranks of the employed working as a temporary social worker for the state. It will last at least four more weeks but I have an interview at the end of the month for a permanent position. I want it bad.
letter to him
After work today I had an appointment with my therapist. She is concerned that I'm bottling my pain. She suggested I either write him a letter (but not to deliver, of course) or talk to a chair in which he is pretend seated. I told her I didn't think I could pull off a Clint Eastwood but that I would give the letter a go. I'm going to try and accomplish that task this weekend and post it here. I think I might have a lot to say.
are you a princess?
I was changing the sheets on the bed a bit ago and Lxkas was in my room doing what Lxkas does (getting into things he shouldn't), and he saw a jeweled crown his dad had purchased from Bath and Body Works for my birthday last year to compliment some lotions. He asked, "Are you a princess, Mommy?"
"Yes," I said. "Mommy is a princess."
posted by Kel on career, change, child rearing, down syndrome child, hurt
I have some good news that I will share in my next update, but for this update I dug out a journal entry I wrote several years back and I hopefully improved it. I wanted to post something fun that has nothing to do with my problems as of recently.
posted by Kel on fishing, freedom, friendship, writing for leisure
While we waited for the screening she spoke softly about the two cousins she'd lost in the last year--the first shot by a policeman who mistakenly thought he was pulling a gun, and the second whose body was found decaying in a wooded area, the exact location she didn't know, but she was attending the funeral the following day.
I recently removed someone from my Facebook friends list because he made a racist remark. I don't draw anymore lines to be crossed for racists. If you're racist you're out of my circle.
But what led to that remark was a photo he posted of his shopping cart while he was in line at the supermarket. I commented that I also liked Grape Nuts. What I didn't realize until some comments following mine was that his photo was not meant to capture what was in his cart, but what he assumed about the people in line ahead of him.
In the photo caption he remarked he was glad he worked and was able to pay for his own food. The comments conversation evolved into a discussion about the people ahead of him, who he and the other commentors assumed were purchasing their food through welfare. I argued with him that sometimes people find themselves in situations they aren't prepared to be in, and he commented that if he had to shovel shit at the kennel he would because he was better than any person that took government handouts.
Okay. He is entitled to that opinion. He and I obviously don't see eye to eye. I didn't like his stance on the subject, but I can't agree with everyone, and I usually agree with very few in this state. Then he likened what he saw to an episode of Good Times and that's when I unchecked the "friends" box.
Well, I'm glad he is no longer a Facebook friend, or real friend for that matter, since I now find myself relying on government assistance to make ends meet. Yes, it's nice when you find yourself in a situation where you need employment immediately and you can hop right into another job because you don't have to arrange for daycare, or because you can accept any shift because you're not responsible to minors in the evening when child care centers are closed. It's nice when your children are grown and you are responsible for no one but yourself, because you have a lot more freedom to choose. It's nice when you're a man and there are an abundance of manufacturing jobs available to you, and because of your physique there are more opportunities period. I don't have all of those luxuries. My opportunities are less than half of that, but I'm trying.
I'm not proud of my situation. In fact, I'm a little ashamed. But I'm also ashamed of how I got here even if the fault is not my own. I don't offer information on my situation to anyone but my family. I've been in this situation for going on a month now but I feel like work is on the horizon. I have some good leads and good people who are rooting for me. I just have to have patience.
My priorities are always shifting. Right now my top two are finding a job and living longer. Oh, and I've finally decided what I want to be when I grow up.
When I was recently met by the Department of Human Services following the incident that changed our lives, I found myself less than impressed with the woman who had come to my home representing the organization to take a report. She wasn't compassionate toward any of us, and I don't necessarily expect that, but when she sat on my couch and began texting I became perturbed. An officer was sitting across from her writing his report. After several minutes I finally spoke up: "I feel like we're waiting for something?"
She looked up and looked at the officer, "I'm waiting on you."
To which he replied, "Oh, I was waiting on you. I thought you wanted to walk through the house?"
Did they really think I wanted them kicking back in my living room (she had made herself very comfortable on my couch) for the evening texting and what not?
People like me, going through what I was going through at that time, shouldn't have to put up with this type of disregard for my situation and invasion of my personal time. I think I could do her job better. I think I could do her job with more empathy and more compassion, and I would be damn good at it. Nobody understands me when I tell them, because after all, I had a really good job as a marketing manager, and I made good money. But money doesn't make me happy. I know that now.
I want to be a social worker. And this worker is not my sole inspiration; it's also Clara. It's all my children. It's my compassion for people who find themselves down on their luck at no fault of their own. It's mothers of children with disabilities who have limited resources and need a little guidance and help. It's people who need someone to help them that understands. And I understand.
I took a required state test for the position and passed. Passing is a 55 and I made a 78. That's not a great score, but I happen to know a social worker who has a masters in this type of work with a minor in psychology and she made a 79. And she's smart! I'm just waiting on that phone call for an interview.
And yes, going through this incident has made me realize I need to live forever--or at least as long as Clara is here. While that's not likely to happen, I am heeding advice from various articles giving tips for life longevity. One is eating a handful of nuts daily, which has been linked to longer life spans. Another link is having a waist that measures less than half your height. I have some work to do in that area, but I'm doing it. I'm eating better and I'm exercising.
According to a report by UNICEF, annually, children with disabilities are 1.7 times more likely to be the victim of abuse than their non-disabled counterparts. This will not happen to Clara on my watch. Nor will it happen to any of my children ever again.
posted by Kel on abuse, career, change, child rearing, down syndrome child, hurt
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